MMS : Day 19 ~ Herxing

Supposed to be 22 drops Keavy's MMS = 11 drops standard MMS, total of maximum number of doses I could get in him, it being the weekend and all... if everything had been all right.

However, Jojo started vomiting about 30 minutes after the first dose, which I gave him at 6:30am.

He had stormed into our bedroom, giggling and laughing (the yeasty kind), exuberant and besides himself with glee at 6:30am.  God only Knows how long he had been up for or whether he had a slept a wink the night before.  (I didn't rewind the CCTV footage to check.)

He threw up twice this morning (not the projectile, Linda Blair kind as some have noted when their child Herx-es on MMS, thank the Lord) after which I stopped the day's dosing.

Tomorrow I go back to the number of drops where he didn't vomit, stay there for a few days before ramping up again.  I had expected this Herxheimer's reaction but prolly not as soon as this.

As much as I am keen to reach max dose so that we can start Kalcker's Parasite Protocol on time next month, it is important not to stress him or make him suffer (any more than he already has).

There are reason I don't allow comments on this blog.

It's almost like a private journal/diary of Jojo's MMS journey.  It just happens to be online.  I need a place where I can keep track of the number of drops given and on what days.  I need to keep a record of the observations I make, the reaction he has towards a particular dose or frequency of dosing.  I need to see a 'pattern', if there is one, of his reaction towards the oral doses, enemas and baths.

As such, it's a DRY blog. I am convinced I am the only who reads it, so providing a space for comments is rather moot.

Secondly, I know there are loads of naysayers out there who do not necessarily agree to my decision to treat Jojo's inherent and chronic gastrointestinal issues with MMS.  I have read what all those on the other side of the divide have to say about it and I don't really want to hear the same broken record.  I have made my decision and as his mother I have a right to make it.  Everyone is entitled to their personal opinion, just that I would like them to keep it that way... personal, I have no need nor desire for them to share it with me. Ta very mooch.

Call me an ostrich if you will but when you rail against those who put chemotherapy drugs in children then perhaps I'd give you the time of day.  Prove to me that MMS given according to Kerri Rivera's protocol has actually HURT a child, then perhaps I might consider giving #teambleach my attention.

This is the last I am going to say about the matter but it needs to be said.

Enema:  20 drops in 1 litre

Sleep : Like a log

MMS : Day 11 ~ Yeast Flare?

11 drops activated MMS in 8 ozs water, total of 10 doses.

Observations:

I had to attend parent-training at Jojo's school again today, something we do every Friday.  I heard Jojo say "all done" very clearly for the first time once he had finished one of his tasks.

He was calm in the car on the way back, fussed a bit upon reaching home but quickly settled down.

Otherwise an uneventful day, just that towards the evening he began to get agitated. Pacing up and down and seeming rather agitated.

Sleep:

Tucked him into bed but another night where it was difficult for him to fall asleep. Took about 2 hours before he could fall asleep and when I woke up at 4 am and checked on him, he was up! Sitting in the dark in the bathroom.

Kinda creeped me out.

Took him back to bed and I tucked him back in.

MMS : Day 9 ~ Anxiety Gone?

9 drops activated MMS in 8 ozs of water, total of 10 doses.

Observations:

Jojo has always been a child who needs someone to be near to him all the time.  Poses quite a problem, even at school, because the therapist cannot leave the room for longer than 5 seconds without him throwing a tantrum.

I read that anxiety and nervousness is a symptom of parasites in the body.

*sigh*

However, today Jojo went downstairs to the empty guestroom all by himself and sat/lay there ALL BY HIMSELF for quite a while.  We were worried because we couldn't find him (he's usually sticking to any one of us like a burr :P) and we were pleasantly surprised to see him spending time by himself in the guestroom downstairs, happily occupying himself by stimming :P (finger/hand flapping and verbal stimming).  Didn't seem anxious to be by himself at all.

Even his father commented that this was something new about Jojo.  Alhamdulillah.

Fatimah, the maid who helps keep an eye on Jojo when I cannot, also commented that Jojo is much calmer than before.  No longer physically aggressive to her when he doesn't get his way. Alhamdulillah.

Good mood coming back from school too today, Alhamdulillah.

Sleep:

Slept very early at around 9:20pm.

Tools of the trade. I had to "deface" the gorgeous Schott Zwiesel lead-free crystal shot glass with stickers so I'd know exactly how much MMS mix (1 oz) to pour out at any one time ;D

MMS : Day 6 ~ Diarrhea

6 drops activated MMS in 8 ozs of water (8 doses) + 5 drops activated MMS in 8 ozs water (4 doses). Total : 12 doses

Observations:

Today the diarrhea started.  Not the "faucet" variety (to put it in Kerri's words) but the soft, unformed stool variety.  I was thinking of going back to 5 drops and stay there for the next 3 days then ramp up again to 6 drops. So I e-mailed Kerri (I hope she doesn't think I am the biggest nuisance! T__T) and she said that it's normal 'detox stool' and should not worry about ramping up another drop tomorrow.

Jojo was in a very happy mood today -- all smiles and giggles (not yeast-induced ones, at least I don't think so!) engaging with all of us in play.  He was still rather languid -- calm and not hyper. 

He got a bit upset in the evening when the nearby mosque started their ritual evening Quran readings over the PA. (Totally unnecessary and bida'ah if you ask me, but hey what do I know.. I'm just your friendly neighbourhood wahabi, right? *tongue firmly wedged in cheek* :P) When the adhan came on he got upset too.  All in all, I noticed an increased sensitivity to sound today.

Sleep:

Slept at 10pm and straight on till the a.m.  I still notice dark circles around his eyes (lighter though now). Most probably due to his (numerous) food intolerances, although we watch his GF/CF/SF diet like a hawk.

MMS : Day 5 ~ Stringy Cheese

5 drops of activated MMS in 8 ozs of water, 8 doses + 4 drops of activated MMS in 8 ozs of water, 4 doses.Total doses: 12.

Today I decided to take advantage of the weekend and Jojo not being at school to get at least 12 doses in him.

Observations:

He tolerated it well and FINALLY had a BM. He passed a huge "log" and I saw a stringy, pale yellow-ish jelly-like piece sticking out of the impressive... err... turd.

Please forgive the language, it's about to get more graphic in here (I hope, anyway... would love to post pics of worms when the time comes! XD )

At first I thought it probably was a piece of ascaris lumbricoides but someone's post on the MMS Autism Facebook page tells me that it could also probably be yeast... or the remains of what could have been a particularly thriving yeast "community". 

A hearty bowlful of ascaris lumbricoides.. >__< Eating spaghetti will never be the same *gag*

From ehow.com:

"Excessive candida may be present in the stool during periods of extreme yeast growth or die-off, also called Herxheimer Syndrome. Die-off occurs when your body is getting rid of excess yeast. Stools with an overabundance of yeast may contain a white, stringy material that is similar to thin pieces of string cheese. This cheesy substance is one of the most common signs of too much candida in a bowel movement. Yeast in the stool has also been compared to cottage cheese. The candida can also look "frothy," similar to yeast in bread mix when it is rising, or candida can look like a mucus-like substance."

Jojo also seemed even more lethargic today than he was yesterday.

Sleep:

He fell asleep in the morning, for a brief period and fell asleep at 9:15 in the evening, a whole 1 hour 15 mins before his usual bedtime. No problems staying asleep tonight, the BM must have been a welcome relief. Thank the Lord.

MMS : Day 4 ~ Constipation

4 drops of activated MMS in 8 ozs of water, total of 9 doses.

Observations:

Jojo started the day off rather languidly, a few minutes he was due to leave for school I had to go looking for him.  He is usually by the door, with his sandals on, waiting for the driver to arrive to send him to school.  This morning he was not by the door.  I found him in the kitchen, lying on the floor (!) in a Cleopatra pose (haha!) just languidly relaxing without any urgency to go anywhere.

Thank God he didn't throw a hissy fit when we made him get up and go to school! 

I had to attend (ABA) parent-training at his school today and his therapists showed me how they play Uno with him.  He was calm and very cooperative.  We had fun, lots of smiles and I managed to win at Uno for once! LOL 

His lead therapist told me that his behaviour has been good this past week (I didn't tell them that I had started Jojo on MMS.  They are not very receptive to the idea of biomedical treatment for children with autism anyhoos..) and he has shown ability to CALM HIMSELF DOWN even when he feels frustrated.  He'd sit cross-legged on the floor, cross his arms a'la "nice hands" position and sit quietly for 2-3 mins.  After that he'll just get up and carry on as normal.  Cool beans, eh? :D Alhamdulillah..

Jojo didn't have his usual BM* today.  His mood seemed all right in the afternoon but by evening he appeared restless. He seemed tired by 10:30pm, yawning and ready to fall asleep. So I tucked him into bed and left him.  I usually watch him via CCTV from my room to make sure he falls asleep (by himself) peacefully.  I could easily lie down next to him to do so but I don't want him to get used to having someone do that.  He'll be 25 before we know it and still expect someone to pat him to sleep! NOT something I want. 

Anyhoos... I observed him being very restless. He got up from bed, started pacing all around his room like a caged tiger. He opened his bedroom door in expectation of me to come, he started to look up at the camera (he knows I am watching) more frequently. Then he started banging on his bedside table, his wardrobe in anger.  I went a couple of times to tuck him back into bed, only for him to get up again as soon as I leave. 

That was when I decided to email Kerri (at 12:00am Malaysian time). This is one of the times I am thankful for time difference between time zones! I asked Kerri if there's anything that I can do to alleviate the apparent discomfort that Jojo was feeling.  She replied promptly (!) and sent me this:

I totally believe that Jojo has worms even though we haven't reached the stage for the Parasite Protocol and the joys of 'digging for gold' are not available for me yet XD

 It was 12:00 am, I did not have any of the necessary paraphernalia to administer an enema so extra MMS doses were my only recourse.  I mixed another 8 oz baby bottle of 4 drops activated MMS and promptly gave Jojo a dose. He had been up for close to 1.5 hrs by that time, in discomfort and agitation.  After the MMS dose, 10 minutes later he went out like a light.

If I had any doubts of the efficacy of MMS, they all went out the window after that.

This stuff is magic in a HDPE bottle.

:)

Bought these from Keavy's Corner

*BM = bowel movement

MMS : Day 3 ~ The Beginning of Speech?

3 drops of activated MMS in 8oz of water.

Observations:

Jojo seemed to be "happily agitated" (I can't quite describe it any other way!) still today, smiling whilst grabbing/poking but I noticed less of the grabbing and poking than yesterday.

However, the biggest "high" of the day was when he handed me his iPad to ask for pancakes using Proloquo2go and said "pampam". Prior to this, if he wanted to request anything using the Proloquo2go from me, he'd just press the pic/icon of the item he wanted and leave the iPad lying around without even passing it to me, without saying anything. So when I first heard him say "pampam" yesterday, I thought I was just hearing things. (I have a pretty wild imagination :P) I put it down to me wanting to hear him say something so much.Then, later in the evening, he practically shoved his iPad under my nose and said, "pampam!" again and the pic of the pancake was right there in the item requested window!

As I posted in the MMS Autism Facebook Group, I don't know if it was magic / my imagination / MMS but I felt like doing cartwheels XD

For a child who is extremely reluctant to open his mouth to verbalise anything, this was a HUGE deal. 

As this is only our 3rd day, at 3 drops... I am hoping that this just the start of many more good things to come. Aamiin.

I was worried that he might not like the taste of the MMS but he seems to take to it all right.  I put the baby bottle in the fridge so he gets to drink the MMS chilled.

Sleep:

Went out like a light and slept on peacefully till the morning.

MMS : Day 2

2 drops of activated MMS in 8 ozs of water today (effectively 1/4 of a drop per hourly dose).

Jojo was supposed to go for his riding lesson yesterday but we decided to call it off due to his "hyperactivity". He's not upset nor angry, just seems to be in a state of "excitement" -- lots of tapping/poking/pinching too today.  Jojo is very strong for his age and a tap can feel like a shove.  His Dad brought him to the pool though and he said that at one point Jojo came up from behind him and gave him a shove that almost made him land in the pool! (Now that would have been one for the album XD - Ed.)

Observations:

• Slightly elevated body temperature enough to flush his cheeks pink after 3 doses or so. (Apparently flushes are part of the Herxheimer Syndrome)
• Very much less coughing than yesterday. Read on the MMS Facebook Group that coughing after taking MMS could be due to parasites in the lung dying. Hmmm.
• Increased hyperactivity and "excitement" still there. It's like he doesn't quite know what to do with himself but is besides himself with excitement. Lots of verbal stim too.

Sleep:

Woke up earlier than usual.

MMS : Day 1

Following Kerri Rivera's MMS (baby bottle) protocol, we started off with 1 drop of activated MMS in 8 ozs of water stored in a glass baby bottle.

Jojo is given 1 oz of the mixture hourly, so effectively he is getting 1/8th of a drop each time. His first dose was given after school at 1 pm.  He is now given 8 doses only although my reading tells me that it is a minimum.  I suppose I could increase up to 9-12 doses a day but I'm kinda leery of the possible increase in die-off effects too.

Given a choice, the joys of dealing with die-off is not exactly something I want to deal with right now given the "state of flux" this house is in since the departure of the very able Diva of Semarang T__T  Seriously, there are days when I think I should move back to a 1,500 sq feet box in the air :P

Observations:

• Jojo seemed to have an elevated body temperature after about 3 doses. Not a full-blown fever but a slight elevation of temperature, higher than normal.  
• He started coughing in the late afternoon as well which continued into the night.  Not continuous but sounded quite chesty/phlegm-y.  
• Seemed more hyperactive beginning in the early evening with excited grabbing, pinching and poking. (I have a bruise to attest to a particularly STRONG poke!)

Sleep:

Like a log